It was then she was diagnosed with Type 1 Narcolepsy.Īs her fourth child was on the way, Tove’s husband suggested that she start a blog as a means to creating an income and assist her in the ability to stay home and raise her kids. When she started falling asleep during client meetings, she sought out a doctor’s insight about her sleepiness. When her mother took her to the doctors they thought it was childhood epilepsy and didn’t require further treatment. In this episode, Tove reflects that she believes both her father and grandfather had narcolepsy and she had a sleepy childhood. Tove is also a person with Type 1 Narcolepsy. She is currently sharing her experience of being a mom of 4 boys on her blog Mama In The Now. Tove Maren Stakkestad is a Danish American Writer and Blogger. You can follow Thomas on Instagram and on Facebook. He says, “ is along the ride to where you want to go in life.” It isn’t driving you. He believes narcolepsy has allowed him to grow in a way that gives him a completely different perspective on the world. Routines, goals, support systems and logical risks have all played a part in helping him embrace his narcolepsy. In his acceptance of narcolepsy, he took logical risks to see how his body could handle different life experiences. He shares how he navigated his educational journey from middle school to grad school, playing sports and now working a full-time job. In this episode, Thomas shares his experience of diagnosis at the age of 10 and how it wasn’t until he began to experience cataplexy that something bigger was going on beyond just being sleepy. Thomas is also a person with Type 1 Narcolepsy and one of the inspirations to the creation of Wake Up Narcolepsy. Thomas Gow is a Client Experience Analyst at TruDataRx. They also have other support groups for people with Narcolepsy that I’ve participated in and highly recommend, especially for people that are newly diagnosed or who don’t have support systems at home.” Tatiana says, “I recommend the Wake Up Narcolepsy Narcolepsy LGBTQIA+ Support Group that I lead on Fridays. Her art Instagram is You can check out her writings about living with narcolepsy here.
She recently became a facilitator for a WUN Support Group – LGBTQIA Support Group. Thankfully, she has found community in the Wake Up Narcolepsy Online Support Groups. Her service dog, Kida, assists her in so many different facets which helps Tatiana feel safe while managing symptoms.īecause Tatiana’s narcolepsy caused such a drastic change in her quality of life, she has had to navigate changes in friendship and familial relationships. Tatiana shares with Claire her current medication and the value of having a service dog. Tatiana currently writes for Health Union about living with narcolepsy. Their hope for her to become a doctor was thwarted when Tatiana couldn’t find a university with the appropriate disability resource office available that would advocate for her in her studies. Initially, Tatiana’s family was supportive throughout her diagnosis process, but coming to terms that there wasn’t a cure for narcolepsy has caused a strain within the familial relationships. Since she experienced such a drastic shift while in the midst of her college career, Tatiana had challenges navigating her studies, managing her symptoms, receiving appropriate accommodations and maintaining her mental health. She was diagnosed in 2017 while studying Applied Biological Studies. In this episode, Tatiana and Claire discuss how the onset of her symptoms occurred after having the flu, while in the first year of college. Tatiana is also a person with Type 1 Narcolepsy. Tatiana Maria Corbitt is a writer, artist and advocate. Boston Marathon 2023 WUNners Application.
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